Assistive Technology for People Living with Brain Injury
Brain injury can often impact a person’s speech, memory, and other cognitive functions.
Community
Caregiver Information Center
Helping you navigate your loved one’s injury and recovery
The Brain Injury Association of America has compiled top resources for your needs.
The opportunity to provide care to a loved one can be both challenging and rewarding. We’re here to help.
As a family caregiver, you know better than anyone that caring for a loved one with a brain injury comes with its own set of challenges. Based on feedback from caregivers across the country, we’ve gathered books, articles, and practical resources that have helped thousands just like you.
Whether you are new to caregiving and don’t know where to start, or a veteran who needs fresh insight, the Caregiver Information Center will provide you with tools and resources for every roadblock you may face in the weeks, months, and years ahead.
If you’re early in your caregiving journey, click here to learn about brain injury basics or call 1-800-444-6443 to speak with a brain injury resource specialist.
Short Reads for Caregivers
Tips for Taking Care of Your Mental Health After Brain Injury
The relationship between brain injury and mental health is complex.
Self-Awareness Issues after Sustaining a Traumatic Brain Injury
Difficulties with self-awareness are quite common, especially in the initial stages of recovery from TBI.
Managing Problem Behaviors: Tips for Families and Caregivers
When a loved one experiences a brain injury, it impacts the entire family.
Getting reliable information in moments of stress and confusion is critical for caregivers of individuals with brain injury. The Brain Injury Association of America (BIAA) has a number of resources available for when you need them:
- Moderate to Severe Brain Injury: A Practical Guide for Families
- Carolyn Rocchio Caregivers Webinar Series
- Articles for Caregivers in our Resource Center
- Virtual Support Groups
- Personal Stories From Caregivers
- Brain Injury Association Affiliates in Your State
BIAA’s National Brain Injury Information Center is here to help. If you need additional support and resources, call 1-800-444-6443 or email braininjuryinfo@biausa.org to speak with a knowledgeable and compassionate brain injury specialist Monday to Friday, 9 a.m. to 5 p.m. ET.
There are 65 million caregivers across the United States.
Caregiving is not unique to brain injury and many, like you, are navigating caring for a loved one.
40% to 70%
of family caregivers have clinically significant symptoms of depression
22%
of family caregivers say they need help communicating with physicians
13%
of family caregivers are providing 40 hours of care a week or more
Additional Resources
- National Suicide Prevention Lifeline: Unfortunately, suicide attempts are more common in individuals who have sustained brain injuries. Nearly half of all brain injury survivors report symptoms of depression. As a caregiver, knowing the signs and having the support you need could save your loved one’s life in the case of a mental health emergency.
- Family Caregiver Alliance: FCA offers services, education programs, and resources for caregivers across the country.
- Centers for Disease Control and Prevention: CDC provides the latest information, resources, care planning, and activities for family caregivers.
- Model Systems Knowledge Translation Center: MSKTC has a variety of brain injury fact sheets on topics such as sleep, memory, and relationships, and more.