Committed to Driving Positive Change
Categories: THE Challenge!
By Stephanie Cohen, Development Manager, Brain Injury Association of America
John Del Cecato, a seasoned political professional with a career spanning nearly 30 years, embarked on his journey in the political landscape by answering phones and making coffee for Dick Gephardt, the House Democratic Leader. He went on to work on local, state, and national campaigns, helping to craft media and communications strategies for politicians including Barack Obama, Pete Buttigieg, Bill de Blasio, Deval Patrick, and others. He eventually settled in New York City and formed a close partnership with mentor David Axelrod. During that time, John witnessed firsthand the transformative power of nonprofits in creating real change, when David and his wife Susan started a nonprofit dedicated to epilepsy research.
However, the fall of 2021 brought an unexpected turn when an electric scooter ride in Ohio resulted in a severe traumatic brain injury. With no memory of the incident, John woke up in the ICU facing a challenging recovery journey. Neurologists, ENTS, and audiologists played crucial roles in his recovery, conducting a slew of x-rays, MRIs, and CT scans.
Miraculously, John made a complete recovery, prompting a reevaluation of his priorities. The experience led him to research brain injury groups, ultimately discovering the Brain Injury Association of America (BIAA). Impressed by BIAA’s mission clarity and efficient use of donations, John made his first donation.
During his post-injury journey, John experienced bouts of depression and a loss of taste and smell, both linked to his TBI. These experiences demonstrated the complex and dynamic nature of brain injury, motivating him to champion continued research and advocacy in the field. Inspired by the care he received and the recognition of his fortunate circumstances, John became an advocate for those who might face unexpected challenges like he did. For individuals undergoing similar experiences, John advises against letting the initial diagnosis define their path forward.
John retired from his busy political career in 2023, embracing a year of global travel, volunteer work, and helping his parents move from Virginia to the New York suburbs. His mission for the current year involves slowing down the world tour, adding a furry companion to his life, and helping BIAA with the reauthorization of the TBI ACT, a piece of legislation that can unite members from both sides of the aisle for a common cause. Through fundraising and support, John is determined to propel BIAA’s mission forward, recognizing the crucial role it plays in driving positive change. This commitment inspired his increased involvement with BIAA and a personal commitment to match donations made during the 2023 year-end fundraising push.
John’s remarkable journey, from the world of politics to his incredible recovery from his accident, showcases his resilience, advocacy, and enduring spirit. BIAA is privileged to have such a passionate advocate in our corner, and we look forward to continuing this journey together, making a meaningful impact on the lives of those affected by brain injury.
This article originally appeared in Volume 18, Issue 1 of THE Challenge! published in 2024.